Despite our best efforts, we lost several children this weekend - not uncommon here given that patients often are sick much longer before they seek medical attention here or they go to a local dispensary first which may or may not know how to best treat them or they try traditional herbal medicine first or they are just too sick for the limited staff and resources we have even at this big mission hospital. But rather than dwell on those difficulties, I'd like to share with you a child that survived miraculously despite all those counts against her - to look on the bright side, as my mom would say.
Baby D was admitted April 17th with severe respiratory distress from pneumonia - she was 4 weeks old at the time and had been seen at another hospital before being sent to Tenwek. She was admitted and placed on antibiotics. On the night of her admission, though, her respiratory status worsened and she was no longer able to keep the oxygen level in her blood up (O2 sats were 60s - normal is 90s) despite CPAP. We don't have an infant ventilator (breathing machine), but we can intubate (place a breathing tube) and deliver CPAP via the trachea to direct the oxygen in as high a concentration as possible to the lungs. The baby still has to breathe on their own for this to work. So Baby D was intubated but it was a big challenge to keep her intubated. She had a lot of secretions from her infection which weakened the tape holding the tube in place plus she was quite fiesty and kept trying to pull the tube out as best she could even though her oxygen saturations plummeted whenever the tube came out. She was reintubated several times - a task that became more difficult as she developed swelling in the vocal cords from the multiple intubations.
The notes in the chart on the night of April 20th-21st read as follows:
130am"Despite endotracheal tube in place, patient not breathing adequately. Oxygen saturations decreasing. Discussed patient's condition and poor prognosis with mother."
2am"After bagging the infant for 3 hours, reintubating, and placing on tracheal free flow CPAP, patient with no spontaneous respirations [not breathing]. No further medical support to offer at this time."
2am nursing note "Resucitation called off. Baby with heart rate of 140 with prolonged apnea. ETT in place. Baby positioned and observed."
230am nursing note "Oxygen saturation increased to 96%. Given meds and left comfortable. May God continue to perform His miracle of healing!" [By the way, that's not a sentence I've ever seen written in a patient's chart before, but it's true. I'm grateful to work in a place where nurses and doctors alike understand and believe that "We treat. Jesus heals."]
Baby D was reintubated at least four more times after this night. She remained intubated for a total of 9 days until April 26th when she was finally extubated to oxygen via nasal cannula. She was off oxygen May 6th and was discharged yesterday in excellent condition. Even in the States, patients needing intubation and significant respiratory support for such a long period of time often don't do well. I've never seen a child live that long here in such a condition. She is a true miracle and I thank God for her life. This picture is her and her mother the day before going home.